International Alliance of Patients Organisations

International Alliance of Patients Organisations

The International Alliance of Patients’ Organizations (IAPO) is a global non-profit alliance focused on promoting patient-centered healthcare worldwide. Established to represent patients of all nationalities across a broad spectrum of disease areas, IAPO unites patients’ organizations at international, regional, national, and local levels. With a membership base exceeding 300 organizations from over 70 countries, IAPO advocates for the inclusion and active participation of patient voices in healthcare policy-making and health system reforms. Its mission centers on building healthcare systems that prioritize patients’ needs, rights, and contributions through capacity building, advocacy, and cross-sector collaborations.

IAPO leverages its extensive network of member groups and stakeholders—including healthcare professionals, policymakers, researchers, and industry representatives—to influence international, regional, and national health agendas. The alliance’s advocacy efforts have notably included emphasizing the role of patients in the design and delivery of care, raising awareness of non-communicable and chronic diseases, and campaigning for patient-centered approaches in legislation and healthcare policy development.

Registered in the EU Transparency Register as an accredited lobbying entity, IAPO actively engages with EU institutions to influence healthcare policy. Their lobbying activities focus on promoting patients’ rights, improving access to healthcare, enhancing transparency in health systems, and ensuring health policies reflect patients’ real-world needs.

IAPO’s strategic direction is guided by a Governing Board composed of elected representatives from member organizations, while its operational activities are managed by an experienced staff team based in London.

The alliance maintains and nurtures partnerships with a wide array of organizations within and outside the EU, fostering a collaborative environment aimed at advancing global patient-centric healthcare frameworks. Financial transparency is part of their commitment as reflected in their declarations in the EU registry.

  • Name: International Alliance of Patients’ Organizations (IAPO)

  • Registration: EU Transparency Register (since approximately 2013)

  • Legal Status: Non-profit global alliance

  • Headquarters: London, United Kingdom

  • Mission: Promote patient-centered healthcare worldwide

  • Membership: 300+ member organizations from 71 countries, representing 50 disease areas

  • Website: https://www.iapo.org.uk

  • Company Registration Number (UK): 08495711

No related lobbyists found.

  • Patient advocacy and representation

  • Healthcare policy and regulation

  • Non-communicable and chronic disease policy

  • Patient rights and access to healthcare

  • Collaborative healthcare stakeholder engagement

IAPO networks with:

  • Patient organizations globally and regionally

  • International health organizations (e.g., WHO)

  • EU health policy and regulatory bodies

  • Medical and health professional associations

  • Industry representatives in healthcare

  • Research and academic institutions

  • Other NGOs and advocacy groups promoting patient-centered healthcare

Exact detailed yearly breakdowns of money spent by IAPO on lobbying in the EU Transparency Register are not publicly available in precise annual figures. However, as a registered entity, they disclose budget-related information in ranges consistent with EU register requirements.

IAPO engages with:

  • European Commission directorates related to health and social policy

  • European Parliament committees focused on health and consumer protection

  • Relevant EU agencies involved in healthcare and patient safety

  • Participates in consultations, hearings, and working groups on healthcare topics

Since their registration with the EU Transparency Register, IAPO has participated in numerous meetings with EU policymakers including Commissioners, MEPs, and EU health officials. These meetings generally focus on patient rights, healthcare system improvements, digital health, access to medicines, and chronic disease management.